The nice thing about the blog is that I can let it all out, disperse the emotion, and then move on. That way I don't have to physically scream and scare the crap out of the neighbors.
The doctor called about half an hour ago when he got back to town. He always seems surprised that anyone would be sleeping at 8 or 9 in the morning. Huh! I talked to him about everything. I told him that I wasn't going to be in limbo for another two months and that I was worried about disease progression. He tried to get my CT scan up to look at it, but his computer had wigged out after a software upgrade. He said there were several phase 1 studies available and one study that looked particularly good for me, but he needed to verify the time frame and available slot. Since we've done all the testing, he said I should be able to get into one within the week.
Hopefully I will hear from him by Monday. I told him I'm available to come down and sign papers and get started at any time.
The last couple of days have been rough. A wise friend in Montana who is going through a similar journey to mine, makes sure that I can see the bigger picture and that I don't get stuck in a rut. He has been a good reality check. You know who you are. It's really amazing that people you never thought you'd be in touch with again, find you at the time that you need them most.
Ain't life grand?
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2 comments:
Any form of hope is a blessing. Keeping my fingers crossed.
I loved your photos of Cozumel! It looks like you had a fantastic time. I'm saying prayers for you Jane! Love, Lori
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