OK, these topics are not alike, but they are what I intend to discuss here.
We saw an oncologist at the RMCC in Aurora, who is affiliated with University Hospital. We discussed my going into a trial. He said he also thought that now would be the time to do this before I try the Zeloda.
He has two phase 1 studies, one of which has two FDA-approved drugs where they want to study people taking both.
He is looking into whether there are any phase 2 pancreatic cancer studies. A study lasts about 8 weeks. It can be very time intensive. There may have to be daily visits at times, and some visits can last many hours. I would probably need to arrange transportation help, as Michael won't be able to take that much time off.
The Dr. said that you never know if you might get something that works really well. It's a crap shoot. We were a little worried about being off drugs if I got something that didn't work, but he said that in my current state of health, I shouldn't lose too much ground if I need to go to the Zeloda.
On 12/4, we have an appt with a renown pancreatic cancer specialist from Johns Hopkins. I need to review the two studies he gave me. We will find out more specifics about the studies and whether I am a candidate. After that, we go to Mexico for a week. WOOHOO!
I have played pool the last couple of weeks. Last week I won my 8-ball and 9-ball matches and also won a makeup 8-ball match. This week I also won my 8- and 9-ball matches. Up until last week, I have consistently lost. I think the more regular playing definitely helps.
Last Friday, since I didn't get a treatment on Thursday, I was able to attend a program at Ball with the shuttle crew who will be doing the Hubble repair next spring. I introduced myself to each of them and shook their hands. I also got the mission patch, instrument pins, and signed photo. It was really exciting to hear them describe their jobs on the mission. I don't know if I'll get to the launch or not, but it was very cool to meet the crew.
Tomorrow is the Turkey Trot. My family, many non-Ball friends, and many coworkers will be running/walking to benefit me and another employee with serious cancer. I'm looking forward to seeing everyone.
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2 comments:
Hiya Jane,
I just caught up on your blog. You may have chemo brain, but you can still get a point across wayyy better than most of these engineers around here. ;) Most folks don't even know what an alliteration is.
I am excited that you will be at your Turkey Trot tomorrow. Me and my hubby will be running in it. See ya tomorrow!
Carmelia
Hey there my friend. I just wanted to let you know that if you need another person to help you get back and forth for this study, I would truly like to help. Please let me know if I can be of assistance. In the mean time we need to go to lunch or something again soon.
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