The rash is here. My nose and chin look like puberty has erupted again. I have other areas of my body that are pink and very tender. I suspect they will be next. I don't know how the digestive tract can yoyo betwee the big C&D all at the same time--sometimes within minutes. I thought I knew fatigue from MS. There is a whole different kind I am getting to know now.
I'm glad that my dosage was cut back a bit last week. It would have been hard to have fun if I had been feeling worse. I'm going to talk to the doctor about reducing the dosage or skipping the week of the wedding.
I am making arrangements to go back to work hopefully three days a week, maybe four. I'm scared that I won't be able to do it. But, we need the salary and I have very good insurance. I'm looking into all my options.
The wedding is less than 3 weeks away. Even tho I'm not doing most of the work, last night I was suddenly overwhelmed by all the people coming to town, getting the house cleaned, going back to work, and everything in between. I feel much better today. I know it will all work out. I will do the best I can.
This is my week off my infusion. I'm looking forward to feeling good and watching the rash continue to spread. (A girl's gotta have a hobby.)
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3 comments:
Hi Jane,
This blog is wonderful - what a great way to keep everyone posted. I read it every day.
I just wanted to tell you how happy I am for you that you're getting married! I know you probably have plenty of help, but please don't hesitate to call on me if there's anything I can do.
Also, I want to thank you for being such a sweet friend to me before I left Ball. I will never forget your kindness: the time you spent listening to me whine and helping me through difficulties.
I know everyone probably wants to spend time with you and I'm no exception to that. If you're up to it, please let me know if we can do lunch or something.
Love,
Robin Birdsall
Robin - thanks for the note. I hope you are doing well at the new job. Thanks for keeping in touch. jr
Jane,
I look forward to reading your blog every day, albeit with some trepidation. I love your honesty and how much your wonderful sense of humor comes through. Keep up the good work. You do more good than you know. Currently I'm taking series of classes for women that will help me achieve a balanced life, and the leader, Rose Blackham, has so many wise things to tell us. You are the epitome of something she said: "Start thinking in a new shape." You do think in a new shape.
Love, Kristy
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