Friday, May 30, 2008

'The Last Lecture'

Some, or maybe many, of you have heard of Randy Pausch and his book The Last Lecture. My father called me to tell me Dianne Sawyer was going to do an interview show on him and that I might want to record it and watch. That was the first I'd heard of him. Then, a couple of friends emailed to tell me about him as well. I've just finished reading his book. It's a very easy read.

He is a college professor who has terminal pancreatic cancer. He gave the 'last lecture' at his university which is a tradition where someone is invited to give the last lecture of the school year. You can watch it at http://youtube.com/watch?v=ji5_MqicxSo (about an hour). He also did the commencement address at Carnegie Mellon http://youtube.com/watch?v=RcYv5x6gZTA&feature=user (6.5 minutes).

He's very inspiring. He has a look out on the world (and has for most of his life) that should be a touchstone to us. He manages to eloquently speak many of the same things I've learned and believe. Though, I have to say, I did not write a 'dream' list when I was a child. But I did have the dream to go to Africa and I fulfilled that one twice.

I'm learning even more about what's important. It doesn't matter whether I go to the dog show this weekend--even tho two good friends came over and bathed and groomed him for us. At least they brought an extra marguerita for Michael. :-P The important thing is that I probably stay home, don't pick up anymore 'bugs', and don't infect anyone else. They can take him, have a good time, and I will be happy with how he does, regardless of the outcome.

Anyway, check out Randy if you have a moment. I have the book if anyone local wants to borrow it. Everything he has to say is relevant whether you have 3-6 months to live (he's past that at 9 now), or whether you will live to be 100. It's not a downer, it's very uplifting.

Enjoy!

Thursday, May 29, 2008

No Chemo Today

Due to my cold, my lowered white count, and lowered platelets, I did not get chemo today. Getting chemo when you are already sick can push things to a bad place. I'm on an antibiotic to ensure that my cold doesn't develop into pneumonia.

Thankfully, I can still have my scan on Tuesday, see the Dr. on Thursday, and then have my next chemo treatment. Don't know if this counts as my week off or how the upcoming schedule will look.

So, assuming the cold/cough clears, I should have a nice weekend and first part of next week.

Wednesday, May 28, 2008

To Chemo or Not To Chemo?

That is the question. I'm still in the throes of a monster cold. I've done nothing but sit around for two days using up boxes of kleenex and watching TV. I'm now caught up on Lost, The Bachelor, The Bachelorette, and ER.

I don't know if they will give you chemo if you are sick with a cold. If not, then that will probably mean I have to put off my CT scan for another week. I hope not. We will find out tomorrow.

It sounds weird, but I really want to have chemo tomorrow so I can get my CT scan next week. The suspense is killing me.

But, as Mick J said, "You don't always get what you want,... but you just might find you get what you need."

Tuesday, May 27, 2008

Fevers and Coughing and Chills, Oh My!

I spent 7 hours in the emergency room Saturday night. Last Monday I started getting a scratchy, irritated throat. I thought maybe it was allergies since I had been out in the flower beds pulling weeds. Thursday the Dr. said my throat looked fine. Friday, I somewhat lost my voice off and on and started coughing.

Saturday I slept in until around 10. Got up and made the bed for our housesitter for Sunday night. Then I peeled an egg and made some toast with peanut butter. Looked at it and threw it out and drank an Ensure. I sat in the living room chair for awhile and just did nothing but cough and feel drained. I went back to bed at 12:30 and got up at 4:00 as I had to bathe and dry Kohbi for the show in Laramie.

Getting ready for that and going up and down the stairs was like moving in slow motion and it was harder to breathe under exertion. It was all I could do to get everything in place. Michael was helping my sisters lay patio stones at one of their houses. I got Kohlbi bathed and mostly dry, after drinking another Ensure after the bath.

Michael came home and I told him he would have to put everything away--I didn't have the strength. I took a shower and then we went to the local hospital emergency room. The center of my chest felt heavy. I really didn't think I had a cardiace problem, but I was concerned I might have pneumonia, as my white counts were down.

I did have a fever of over 101, which for chemo patients is not great. My blood pressure was low (even lower than normal). I gave them my symptions and my history, including the cancer, chemo, and blood clots. My D-Dimer (for blood clots) came out high, so they had to do a chest CAT scan to rule out clots. No clots. I had a chest x-ray. No pneumonia. I had an EKG. It was not normal, so they wanted to compare it to a previous one at Boulder Community Hospital. That took forever. That EKG was abnormal as well. I guess I'm just normally abnormal.

The doctor, nurses, and technicians were all very nice. After all that, I probably had a bronchial infection. I had a nebulizer treatment. I couldn't produce any sputum into my mouth that they could analyze for bacterial or viral origin. I went home with an inhaler and a a 5-day antibiotic.

We got 4 hours of sleep before having to get up on Sunday to get ready to go to Laramie. Thankfully we didn't show until 3:00 or would have had to blow off that day.

I felt a little better, but not much. I got Kohlbi combed out, my breeder trimmed his feet, we finished packing and took off about 10:30. Had to stop in Ft. Collins to get my prescription filled. The pharmacist couldn't read the doctor's name. I had to call the housesitter and have her look at the paperwork. What should have taken 15 minutes, took almost 45.

We got to Laramie about 1:00. Plenty of time. Unloaded and set up and then sat for awhile. I was exhausted. Finally got him ready for the ring and went over and sat and waited. Kohlbi won his class but that was it. We got an invitation to dinner, but by then I was feeling like I was walking through water. We went out for a quick dinner near the hotel. I was sure I had a fever again--I was really chilled and shivering. Finally ate some fish (after not eating much for two days) and checked into the hotel. Took some Advil and got under the covers.

Monday morning I felt a little better. Had breakfast with a dog friend. Got Kohlbi ready to show and he got a 3-pt major with best of winners. He now has 10 points, and only needs 5 single points since he now has 3 majors (only needs two). That helped me feel better. We packed up and left town and drove down Hwy 287 in rain and thick fog for about the first half our. Then things cleared up.

The high of the win was wearing off and I started to feel really fatigued. We went to a friend's birthday party for a little while, then came home and crashed. But I couldn't sleep. I was chilled, the dog had to go out, I had to pee a zillion times, Michael snored. I woke up the morning with a raucous chest and head cold. I didn't want to go into work and cough all over the place or catch something else while my system is down.

Today I am resting and doing nothing. I hope that chemo goes well on Thursday. We have another dog show in Longmont this weekend. I told my breeder I may need help with Kohlbi if I'm not feeling well. The third treatment in a round is tough.

I'm trying to balance illness and my life. I think this weekend was a little off balance. Hopefully we'll get it better from here.

Thursday, May 22, 2008

Round 3, Day 8

We went in today for chemo. The Dr. said my platelets were good, but white cell count a bit low. May have to adjust dosage next week. My third treatment is next week. After that I will get another CAT scan. During my week off I will meet with the Dr. to go over results and status where I am at. He says I'm doing really well. My CA19-9 has gone from 9,000 to 57, 3 points above the top of the normal range. He is optimistic that my scan will show progress of some kind or another. Perhaps tumor shrinkage, slow-down of growth, or maybe even some of them gone. I'm very anxious to find out how I am doing.

If things look good, I'm definitely going to get a port. It took two very painful sticks today to get in a vein. I still have bruises up my vein in the arm from last week. After next Thursday, I'm done with chemo in a new vein each week. Plus, the medication is very hard on the veins.

I've had a scratchy throat all week, but Dr. said it looks fine. I think it's probably allergy related since I've been pulling weeds in the flower gardens. Kind of lost my voice tonight. I've enjoyed doing the weeding. I put on my ipod, rock to the music and pull weeds. It's very therapeutic, as I can just put other things out of my head. And, the flower beds look nicer.

I got the usual headache and slept for a few hours. Wouldn't you know, that today would have been a great local storm-chasing day, and I missed out. Dang!

Monday, May 19, 2008

A Hope for a 'New Normal'

I think (but I could be wrong) that we are kind of settling into a 'new normal'. We are through the start of chemo, medication adjustments, other problems, the wedding, visitors, Albuquerque, etc. My plan is to work Mondays thru Wednesdays. During my week off chemo, I will work 5 days if I am up to it. It will be good to have some kind of regular schedule.

I am realistic enough to know that this could all be blown out of the water. My hope is that we have this chance to finish thank-you notes, get caught up on yard work, go to the dog club meeting, play pool, spend time with the 4-legged children, and just relax.

I am thinking about meeting my trainer on Friday afternoons for a light work-out. I feel I am losing some strength. I need to do something on a more regular basis. Easy things I can do at home. I hope she will take me back.

I accept my situation and am making the best of it. A little 'new normal' is all I'm asking for. At least for awhile.

Friday, May 16, 2008

Round 3, Day 1

Yesterday was day 1 of round 3 of chemo. My counts were a little low, but not enough to change treatment. I can't use the veins in my left hand now. The hand stays sore for a long time. We used a vein in the right arm. If things look good after the CAT scan in 3 weeks, I may get a port. It's very painful to get these needles, and then if they have to move it around or do it again, it's just not fun.

I got the usual chills and headache, but slept for 4 hours. Today I just feel kind of drugged. I'm having a pelvic ultrasound today. I've been getting an intermittent knife-sharp pain when I bend over a certain way. The Dr. took out my IUD (I don't need it anymore anyyway), but that didn't do the trick. Hopefully it's just scar tissue or something.

Always a new adventure.

Tuesday, May 13, 2008

Albuquerque

We got back from Albuquerque about midnight last night. Our trip purpose was two-fold. We went down for a dog show. Kohlbi showed very well and got reserve on Saturday and a second place in his class on Sunday. No points, but he did well.

The other reason was to visit more with Michael's relatives who came down only for the day of the wedding. It was great to get to spend time with them where we could actually talk. I really didn't get a chance to talk to his brother and sister at the wedding. It was also nice to see his grandparents again. I love the southwest architecture. Kohlbi got to run around a large, flat grassy backyard and had a grand time with the chance to get dirty after two days at the show.

We rode the tram up to Sandia peak and got an awesome view of the city lights at night. The weather was great. The drive through Taos was lovely. The drive from Alb to Los Alamos over the Jemez Mountains was beautiful with the red clay mountain sides and cliffs.

I had about 36 hours of the Big D. Sorry for the pun, but it's given me a whole new definition of toxic waste. I'll say no more. I'm now taking my chemo pill every other day. That was really the only downer of the weekend. I didn't have much appetite and felt kind of wrung out the last two days. Thankfully, Michael did all the driving. Drivers in NM are crazy!

It was a really nice 4-day get away. I'm looking forward to more of those.

Thursday is Round 3, Day 1. Another round and then a CAT scan for some visual knowlege of what is happening.

Wednesday, May 7, 2008

Friends

I just said goodbye to two friends. One I've known since the early '80s, but hadn't seen in about 15 years. The other I met once 4 years ago, and then again in Vegas and again here in Colorado. Friends are the best thing about getting older. They mean more to me now than they did when I was younger. Not that I didn't love them when I was younger, but the benefit of a 'few' years puts a different spin on relationships. The relationships are deeper and more meaningful, even if we don't see each other very often. My women friends are some of the most fantastic people I know. We help each other out through hard times and celebrate the good times. We know each other well. We have fun together, we laugh together, and we've cried together through various tragedies that have befallen us. I have a work-related group of friends, a dog-related group of friends, and others that I've picked up along the road.

Since this journey began, I've heard from people I haven't talked to in years. They have bridged the gap of years between us to pray for me, send me good mojo, and just check in to see how I'm doing. They have offered to help with anything within their means or power. It means the world to me--more than any of them can ever know.

Some friends have come and gone from my life--not always by my choice--and I've struggled to understand the lessons. Sometimes the lessons are hard. I can look back and see now why certain people were in my life for even a short time. I needed them at that time or maybe they needed me, or we needed each other. Others have come in and out of my life at various times, yet it's not awkward. We pick up where we left off. It's amazing to look back on each relationship, no matter how long or short, and see what the value was or still is.

I've learned a lot about friendship. I've learned that I haven't always been a great friend, or even a good friend. I've learned that part of friendship is giving up some of my own selfishness. That I can be truly happy for someone even if I'm a tad envious. Because it's not all about me (especially since the wedding is over). I think I've learned to be a good friend over the years, and I know that I can still strive to become an even better one.

Tuesday, May 6, 2008

Rash

The rash is excema. I have a prescription-strength creme to put on it now. Hopefully it will go away within a week or so. If not, then I go back. It was nice to be able to get in so quickly to see a dermatologist. I'm really tired today, but actually did have an appetite. Back to work tomorrow.

Monday, May 5, 2008

Back on Track

I had chemo today. I have a little bit of the headache and had some chills during my nap. It's great to be back to normal. :-P

The big D has backed off. The Dr. isn't sure what the rash I have is and has referred me to a dermatologist. I will start round 3 next Thursday.

So, I should be feeling good for Albuquerque this weekend and for dog bathing/grooming on Thursday. I will go back to work maybe later tomorrow and then Wed/Thurs for sure (barring any unexpected events).

I will go back on my chemo pill tonight. Hopefully it will not bring major big D with it. If so, I can start taking it every other day. I hope that isn't necessary. If it's working, I want to get it daily. I don't think the Dr. was too thrilled with my being off it for a few days. But, I did as the PA said. It made sense at the time. They can hash it out between themselves. I'm trusting them to do what's right for me.

Sunday, May 4, 2008

Round 2, Day Unknown

My round 2 of chemo is out of whack now with the wedding and the the big D delaying the last treatment. The antibiotic seems to be helping. Things aren't 'normal' but are better than they were a few days ago. I'm not eating much, that probably helps. I need to drink more water, though. My wedding ring is loose on my ring finger, and I've been wearing it on the middle finger so I don't lose it.

The fungal rash I have inside my arms at the elbows and behind my knees isn't getting any better. The one behind my right knee is a bit painful at times. The superficial blood clot on my leg is diminishing in size. I've started to notice a few errant hairs in the bathroom sink and in my comb. The thinning has begun.

I'm assuming that I'll have my treatment tomorrow barring a bad white count or low platelets. I haven't actually seen my Dr. in a few weeks. It will be good to connect with him again. Not that I don't like the PA--I do.

It's funny how we've become sort orf connected to some of the people at the RMCC. They were so happy to know we were getting married and wanted to hear all about it when we were in on Thursday. We got hugs. They are nice, caring people.

The journey continues. We don't know what lies around the next corner.

Saturday, May 3, 2008

Wedding Pix

I have uploaded a few of the raw wedding photos onto the following link: http://www.flickr.com/photos/26243708@N07/

Unfortunately, I didn't realize that the first photo would go to the bottom and the last be on top. So, you may want to look at them from the bottom up.

I finally got the disposable cameras in for development today. I should have the CDs of them tomorrow.

The professional photos will eventually be loaded to a site where anyone could order prints of them and the photographer will make a little money.

I hope you enjoy.

Thursday, May 1, 2008

"No Chemo for YOU!"...

...said the chemo nazi. I went in this morning looking forward to my treatment as always. :-P I had another long bout with the big D from 2:30 this morning until 8:30. I told my PA and she was concerned. She said that my platelets were still good, but down from last week. She was concerned that my insides were becoming ragged and that I may have an infection, even tho my outsides still 'wook mahvelous'. She told me to stop taking my pill and said I wouldn't be getting treatment today. She asked for a sample for the lab. I won't go into gory details. We ate an early lunch at the hospital in hopes things would start moving again. Then drove my mom back to Longmont. Then just at the south end of Main St. we pulled into the local McDonalds and I got to do my lab work there. Then back to Boulder to drop it off. We've learned never to assume that I'll just be going in for a chemo treatment and then right home.

The golden nugget for today is that my CA19-9 is almost half what it was the last time, which is somewhere around normal, I think. I have an antibiotic to take and an appointment with the doctor on Monday. If things are better I will have my treatment then.

Not having to get chemo is keen, but I worry about going too long. I'm really curious to see my next scan.